ERN-ITHACA - European Network for Rare Malformation Syndromes
ERN-ITHACA is a European reference network for rare malformation syndromes and rare intellectual and neurodevelopmental disorders.
Select
Contacts Finder
Search, select, and contact in bulk.
Showing 1–15 of 32 results for Rare-Malformation.
A Little Piece of Eden - A Parenting Blog and Adventures of Raising a Child with a Rare Condition|Lymphatic Malformation
A Parenting Blog and Adventures of Raising a Child with a Rare Condition|Lymphatic Malformation
Select
Cortical Malformation & Cephalic Disorder Foundation
The Cortical Malformation & Cephalic Disorder (CMCD) Foundation founded in 2014 is a non-profit organization dedicated to improving that quality of life of patients and their families who have been affected by the diagnosis of a cortical malformation or a cephalic disorder.
Select
CPA Research Foundation
CPA Research Foundation is a UK-based charity raising aware ness and funds for medical research into Cerebral Proliferative Angiopathy (CPA) - a rare incurable neurovascular brain disease.
Select
Suzanne Chisum | Family Food and Life
Select
Home
Select
SportsFromtheFish – UNC Basketball/Titans/Hornets Fan talking all things sports.
UNC Basketball/Titans/Hornets Fan talking all things sports.
Select
AVM | United States | The Yakes Vascular Malformation Center
The Yakes Vascular Malformation Center is dedicated to the diagnosis and management of vascular anomalies in all anatomic locations.
Select
Pontine Tegmental Cap Dysplasia | Ptcd
Information on Pontine Tegmental Cap Dysplasia a rare brainstem malformation. PTCDSupport.org
Select
Kennedys Cause | be kind. be proud. let your inner beauty SHINE.
Select
Alliance to Cure Cavernous Malformation Cavernoma Cavernous Angioma
By whatever name you know it - cavernous malformation cavernoma cavernous angioma cerebral cavernous malformation - find information opportunities and hope here.
Select
Carion Fenn Foundation - Home
A place to share learn & Support.
Select
Highway of Hope | Rare Disease Support | Pediatric Rare Diseases Help
Rare Disease Support: Highway of Hope helps patients and with rare diseases find resources assistance and support. If you or your child have a rare medical condition Highway of Hope is here for you.
Select
CLOVES Syndrome Foundation :: Home
CLOVES Syndrome Foundation a 501(c)3 not-for-profit organization is focused on improving the lives of CLOVES patients by funding Overgrowth and Vascular Anomaly research. The CLOVES foundation is committed to raising public awareness and providing member support by offering educational literature and resources...
Select
Fore Griffin Foundation
The Fore Griffin Foundation Inc is an Arizona non-profit corporation with 501 (c)(3) status. The Fore Griffin Foundation focuses on supporting children and families who are facing life-threatening or life limiting conditions in honor of Griffin J. Connell.
Select
Centre de référence Spina Bifida Dysraphismes (CHU Rennes)-OFFICIEL
Site dinformation officiel sur le Spina Bifida ou dysraphisme spinal - Le CHU de Rennes a été relabellisé Centre de Référence pour le Spina Bifida en 2017
Select
AVM Research Foundation - AVM Research Foundation
AVM Research Foundation is committed to raising funds to increase awareness of AVMs earlier detection and finding a safer treatment for those affected. Approximately 1% of Americans are diagnosed with Arteriovenous Malformations (AVMs).
Select
Home | PediatrickBoxx
Select
Tymiak Hawkins – Becoming the Light: Navigating Darkness After Stroke
Select
SDSR-EU | Shwachman Diamond Syndrome Registry Europe
Select
Ready.