Rare Diseases leads | Dataslug.com

rare diseases in - Fortbildung zu seltenen Erkrankungen

rare-diseases-in.com

„rare diseases in …“ ist ein virtuelles Format für spezialisierte Ärzt*innen dass den Teilnehmenden in unterschiedlichen Sendungen verschiedene seltene Erkrankungen nach Indikationen und Themenfeldern präsentiert.

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Saudi Event for Rare Diseases 2023

saudirarediseasesevents.com

The Signal to Noise Ratio: a Saudi Ministry of Health Rare Diseases Moonshot Pledge. During this day Saudi Rare Diseases conference experts will deliver the most updated knowledge related to rare diseases in presentations and workshops in various medical fields. The Saudi for Rare Diseases Conference will also give opportunities for researchers to present their research in the field of rare diseases in the form of abstracts presentations and workshops.

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Healthcare | Rare Diseases South Africa | Charity

rarediseases.co.za

Rare Diseases South Africa bridges the gap to improved quality of life for those impacted by Rare Diseases and congenital disorders through advocacy and empowerment.

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Welcome to the Second World Congress on Rare Skin Diseases.

wcrsd.com

12 13 14 June 2024. Welcome to the Second World Congress on Rare Skin Diseases.

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Home | Rare Diseases Clinical Research Network

rdcrn.org

The Rare Diseases Clinical Research Network (RDCRN) is a National Institutes of Health-funded research network working to advance research in rare diseases.

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Foundation for Rare Disease Research - Discover search and support diagnostic solutions for rare diseases

ffrdr.org

Discover search and support diagnostic solutions for rare diseases

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NGO Committee for Rare Diseases

ngocommitteerarediseases.org

The NGO Committee for Rare Diseases brings together knowledge and experts to promote rare diseases as a priority in global health research and social care

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MENA Congress for Rare Diseases

menararedisease.com

The largest event for rare diseases in the MENA region with a special emphasis on the utility of artificial intelligence in rare diseases recent research regional experiences and advancements in diagnostics and therapeutics in rare diseases.

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MENA Congress for Rare Diseases

menararediseases.com

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Chiesi Global Rare Diseases | A Rare Disease Therapeutics Company

chiesirarediseases.com

Chiesi Global Rare Diseases is a family-owned and run biopharmaceutical company with a commitment to providing transformative care to patients with rare diseases.

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Specialists for Rare Diseases / Orphan Diseases

rare-disease-specialist.net

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Ultragenyx—Treatment of Rare and Ultrarare Genetic Diseases

ultragenyx.com

Ultragenyx is focused on developing first-ever approved treatments for rare and ultrarare diseases and moving the rare disease community forward.

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Organization For Rare Diseases India | ORDI

ordindia.in

ORDI was founded to address the many challenges in the management of rare disease in India. A lack of awareness about rare disease even among doctors means that a diagnosis can often take many years.

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ERN BOND – European Reference Network on Rare Bone Diseases

ernbond.eu

Network ERN BOND is one of the 24 existing European Reference Networks (ERNs). In particular ERN BOND aims to improve access to high-quality healthcare for patients suffering from rare bone diseases. Mission ERN BOND aims to implement measures that facilitate multidisciplinary holistic and patient-centred care

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Introduction to Rare Genetic Diseases of Obesity

leadforrareobesity.com

In rare instances a rare genetic disease of obesity can prevent your brain from telling you that youre full. Learn how this can happen.

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Rare diseases | Project Sebastian

projectsebastian.org

We at Project Sebastian give support and hope to families affected by a child with a rarediseases. We are here to provide education therapies and counseling.

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Orphan Drugs & Rare Diseases 2022 Americas | PGE-Group

orphandrugsamericas.com

A unique conference for the orphan drugs industry including discussions and networking with top-tier individuals and organizations on 7th - 8th December in San Francisco CA.

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European Conference on Rare Diseases - ECRD2024

rare-diseases.eu

The ECRD is recognised globally as the largest patient-led rare disease policy event in which collaborative dialogue learning and conversation takes place forming the groundwork to shape goal-driven rare disease policies and allow for important and innovative discussions on a national and an international level to take place.

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AcceleRare – Advancing drug discovery for rare diseases

accelerare.ch

AcceleRare a Swiss answer to the challenges of rare diseases AcceleRare is the collaborative response of the Swiss research community to the National Rare Disease Policy. Our common goal is to use cutting-edge academic science and a unique project management structure to develop new drugs and therapies while addressing related societal challenges. Who are we?…

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Going With the Gagnons | Supporting Rare Diseases

goingwiththegagnons.com

Going with the Gagnons is on a mission to bring funding and awareness to rare diseases. We are raising funds through a collection of affirmational sweatshirts and stickers. There are different

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