Khure Health: Identifying Rare Disease Patients
Empowering physicians to identify rare disease patients and put them on the right care pathway.
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Showing 1–15 of 516 results for Rare-Disease-Patients.
CNETS SG | Home Page
An association of patients caregivers and physicians promoting better understanding of carcinoid and neuroendocrine cancer a relatively rare disease which is poorly understood and is often misdiagnosed.
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Albireo Assist
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Acromegaly Support • Hope for Rare Disease Patients and Families
Acromegaly Patient Resources Acromegaly Support is an online community resource committed to raising awareness of the early signs and s ymptoms of Acromegaly.It is our hope that by joining the global rare diseases community and responding to the voices and needs of patients families and clinicians awaiting diagnosis and treatment for their disease that together
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FOUNDx genetics for rare disease
Connecting rare disease patients with treatments is our passion. Our expertise lies in diagnostic market capability and optimization: genetic testing programs genetic interpretation disease incidence estimation biomarker assessment and more.
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Betterment of Malaysia Rare Disease Children’s Future
Highlights the challenges faced by Rare Disease recommended solutions tribute to warriors/heroes recognition to Rare Disease champions
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Zevra Therapeutics - A rare approach to therapeutics.
We overcome the challenges of traditional drug development by following the data and weaving a compelling regulatory narrative that puts unmet needs of patients front and center.
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Living with Raynauds Disease Patient Support Community
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Welcome Members! - Living with Graves Disease Patient Support Community
Welcome to Living with Graves Disease Patient Support Community! Our mission at Ben’s Friends is to ensure that patients living with rare diseases or...
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FOSMN Patients foundation – To share experiences and information on an extremely rare neuron disease
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Onena Medicines :: Targeting locally secreted growth factors to treat cancers and rare disease patients
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Purplemoon
Welcome to Purplemoon. Rare in our thinking our doing and our giving. More than a company. A calling.
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Genexfy – Genexfy
At Genexfy we specialize in genomics and bioinformatics services. Our genomics analysis uses advanced algorithms and computational methods to analyze large and complex datasets generated by high-throughput experiments such as DNA sequencing providing insights into the genetic basis of cancer and rare diseases and their response to treatment.
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Vermont Rare
Vermont Rare is dedicated to raising funds and awareness in support of patients and families who live with rare disease.
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Home - LGMD Awareness Foundation
TOGETHER WE ARE STRONGER Raising awareness and advocating for individuals with LGMD. LEARN MORE DONATE TOGETHER WE ARE STRONGER Raising awareness and advocating for individuals with LGMD. LEARN MORE DONATE TOGETHER WE ARE STRONGER Raising awareness and advocating for individuals with LGMD. LEARN
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Home - LGMD Awareness Foundation
TOGETHER WE ARE STRONGER Raising awareness and advocating for individuals with LGMD. LEARN MORE DONATE TOGETHER WE ARE STRONGER Raising awareness and advocating for individuals with LGMD. LEARN MORE DONATE TOGETHER WE ARE STRONGER Raising awareness and advocating for individuals with LGMD. LEARN
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Pai Advisory LLC
Owned and managed by Ruth-Anne Pai PhD as a means to provide scientific advising to the rare disease community.
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Home - Ardius Pharma
Our Priority Provide valuable therapeutic solutions Focused on patients suffering from Rare Diseases In Greece and Cyprus Learn More > 7000 Rare Diseases are known globally > 500000 suffering from a rare disease in Greece 1 out of 2 patients with rare disease is a child 3 out of 10 children affected never reach their […]
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Yayasan MPS & Penyakit Langka
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Úvod - AVMinority
Spolek podporující osoby s AVM
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