Welcome to the NC Rare Disease Network About the NC Rare Disease Advisory Council Mission The mission of the North Carolina Rare Disease Network is to improve the lives of millions of people with one of the 7000 devastating rare diseases by creating a unique collaborative partnership between patients providers scientists agencies and industry. Introduction…
Champions for Rare Disease by raising awareness and research dollars to provide support for families in Alabama and beyond. Research. Awareness. Support. Change.
Rare Disease Therapeutics (RDT) is a pharmaceutical company that brings orphan drugs to the US market for people with rare diseases and unmet medical needs
Rare Disease Support: Highway of Hope helps patients and with rare diseases find resources assistance and support. If you or your child have a rare medical condition Highway of Hope is here for you.
Podcast featuring stories from people focused on finding treatments for rare diseases incl uding rare disease families clinicians researchers and industry leaders.
Connecting rare disease patients with treatments is our passion. Our expertise lies in diagnostic market capability and optimization: genetic testing programs genetic interpretation disease incidence estimation biomarker assessment and more.
At The Rare World Official We truly believe that you can make a change in th e rare disease community. Lets ensure that everyone gets access to healthcare.
Asia Pacific Alli ance of Rare Disease Organisations non-profit organization patient advocacy provide support on skills development share information and resources policy awareness and encourage members engagement on initiatives for rare disease. www.apardo.org
A Specialized Laboratory and Rare Disease CRO Test Directory Order Forms Draw Kits Machaon LIVE Reference Laboratory Services Coagulation & Platelets Testing Complement Testing Advanced Genetics Testing Sponsored Testing Programs Clinical Trial Services Rare Disease CRO Central Laboratory Services Subject Site & Sample Finder Innovative Trial Solutions That was fast! Faster lab results lead to …
Acromegaly Patient Resources Acromegaly Support is an online community resource committed to raising awareness of the early signs and s ymptoms of Acromegaly.It is our hope that by joining the global rare diseases community and responding to the voices and needs of patients families and clinicians awaiting diagnosis and treatment for their disease that together